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Below are the 13 most recent journal entries recorded in pcos_childfree's LiveJournal:

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Saturday, July 5th, 2008
10:40 pm
[rebelkitten]
Contraception
I have recently been regularly sexually active since I was diagnosed with PCOS two years ago. I know this is risky, especially for those without PCOS, but we have been practicing pull out method. Although, I need to clarify that I am in a serious relationship with my partner and we did originally use condoms, until we were clear for STDs. I have been on BCP in the past, before I was diagnosed and they made me too emotional. I figured since I have infertility issues coupled with the withdrawl method that I should be low risk, but of course I am having anxiety about the small possibility of getting pregnant which absolutely makes me shudder. I really do not want to have to go on BC pills, but I am thinking that may be my best option. What does someone else suggest given our lower rate of getting pregnant but still needing some contraception and if BCP are the only reliable method, which kind would you recommend for PCOS? I should also add that my partner is also looking to get a vasectomy, but we need something in the mean time.
Sunday, July 29th, 2007
1:50 am
[evergrey]
Hello there!
Hi!
I have PCOS, and I am childfree by choice.
On the 26th of this month, at the age of 27 (almost 28) I finally managed to get a tubal ligation!
I also, at the recommendation of my gynecologist, got my ovaries drilled. Most of the info I see is about treating infertility, but he said it helps with PCOS symptoms as well. Here's hoping, since the metformin made me all kinds of crazy. :/
Has anyone here tried ovarian drilling? Did it help any? What sort of side effects did you suffer?
I've been in a lot of pain and really nauseous since the procedure. It has only been a couple of days though, so I'm not concerned yet. It's nothing compared to the back surgery I had in Feb.

my battle with the medical establishment, PCOS, and finally, freedom!Collapse )
Wednesday, June 20th, 2007
4:26 pm
[lula_neith]
Mirena IUD
Writing to ask what people's thoughts are or experiences with the Mirena IUD have been. I got a DepoProvera shot. It did not stop my bleeding. I now have INCREDIBLE mood swings and homocidal as well as the previous trouble with depression and the trouble with weight loss. I am absolutely DESPERATE to STOP the bleeding. A couple of years ago I bled and clotted for 4 months straight and I would literally kill myself if that happens again. I'm not interested in anything but that end: the bleeding MUST stop. That said, the doctors don't seem especially concerned that this is an issue. I, however, will have to DEMAND action if it goes on much longer.  I was not warned that Depo would/could cause MORE bleeding (aside from the out-of-control emotions).

So, a friend suggested getting the Mirena IUD once the Depo wears off. The doctor wouldn't have even =suggested= it to me if I hadn't brought it up; he even brought up hysterectomy before I mentioned the Mirena. Then he brought in a brochure (?). My friend, who is a nurse practitioner, said there are less symptoms and less bleeding sooner, thogh the first couple weeks there might be blood. Is anyone using this or do you know of someome who has? I hope to get the Mirena in August rather than renew the DepoProvera crap.

I have more faith in the thoughts and suggestions of women who have experienced this than the doctors at this point. Thank you for any and all responses.

Crossed to: PCOS, PCOSsupport and PCOSchildfree
Friday, May 18th, 2007
4:52 pm
[queennoise]
IUD problems possibly PCOS related?
The setup: I just got my Paragard IUD on Wednesday. I'm on metformin and accomplia for my PCOS. I have been on several vareities of birth control (pills, depo, the ring) and as a result have not had a 'real' period in almost 9 years. I also haven't had any sort of period since September.

The question/problem: I was in a ton of pain my first day and then it died off the second and now is touch and go in my third day. My concern is that I keep having cold sweats, shakes, and dizziness. I'm bleeding at a light to medium flow. What I'm trying to figure out is if I'm having a reaction to the IUD (I'm not allergic to anything in it that we know of) or if this is just me having a period for the first time in nine years and my body not taking it so well. It passed my mind that maybe I'm low on iron or something that is what is making me feel dizzy. I was wondering if anyone else has gone through this. My doctor's office is closed and there aren't any local ask-a-nurse lines. Any help is appreciated.

x-posted to IUD_Divas
Monday, April 30th, 2007
3:18 pm
[nebula1500]
adding metformin to the mix
So, about a month ago, I went to an endocrinologist for the first time, and he diagnosed me with PCOS. Pretty much my only symptoms were elevated DHEA and testosterone levels, which led to irregular periods (I skip months) and hair loss.

The doctor recommended I go on the pill to regulate my period, but I have an IUD, and don't really care if I get a period every month, so he prescribed Spironolactone instead for the hormone levels and hair loss.

Now I've gotten my first period with the Spironolactone, and it's going on week two. It seemed like a normal period for a week, and then I thought it ended, but I've been spotting for over another week now.

I called the endocrinologist, and the NP said that I should start taking Metformin now, too, to regulate my period. And that I should get more bloodwork done, and have an ultrasound.

I'm starting to feel like a real sick person! ALL I care about (vain as it may be) is that my hair stops falling out all over the place. Is all this medicine REALLY worth it?

I'm hoping I'll start taking it, and I'll stop spotting and maybe lose some weight, and all will be well with the world.

But I'm afraid I'll start taking it, and have cramps and diarhea and god knows what with my period. I've also read that it can make hair loss even WORSE.

I could understand all this if my insulin levels were off. Or if I was trying to conceive. But my insulin and all that is fine, and I was rather ENJOYING my impaired fertility.

Anyone have any words of encouragement?
Friday, April 27th, 2007
8:31 pm
[pcos13]
hey girls,
i started on 50mg of sprinolactone about 3 - 4 wks ago and i think it might be affecting my period??

im not sure but whoevers not grossed out and think they might know... here are the
Wednesday, April 18th, 2007
4:22 pm
[nebula1500]
Introduction
Hello! I didn't know this community existed! But I'm glad it does. I hate boasting about my infertility in non-cf communities. I feel bad when people who can't get pregnant when they actually want to comment and are sad. Like I'm rubbing it in their face or something.

Anyhoo, my first endocrinologist appointment was two weeks ago, and based on my DHEA level being more than twice the normal upper limit, and my other male hormones being on the high end, he said that I probably have PCOS. I went back today after he did some more bloodwork, and unfortunately I only spoke to the nurse, and am suffering a random terrible ear infection and was not interested in asking lots of questions while I was there, so I still don't know for sure if I actually have it. Although the doctor really seemed to think so last time, and the nurse didn't say anything different. I sort of wish they would have just called so I wouldn't have had to come in for them to just say "everything the same? ok then."

My only symptoms really are irregular period (too few, not too many), and hair loss like crazy. I have also noticed that since I went off the pill (I got a non-hormonal IUD, which I love) I've been feeling very bored and demotivated all the time, but I'm not entirely sure that that's related. I feel very lucky to have found the doctor I did! I was sort of expecting a big crazy fertility talk, but I told him that I am childfree and that I am basically only concerned about the hair loss, and he said "OK. Then we'll only worry about the hair loss." So yay to that.

He prescribed Spironolactone for the hair loss. I've only been taking it for two weeks, so I guess we'll wait and see about the results.

So anyways, I just wanted to say hello. I'm sure I'll be posting again in the future...
Wednesday, February 28th, 2007
10:31 pm
[pcos13]
hey, i got my blood test results back... but i wont be seein an endo for maybe a month so i was wondering if anyone on here could decipher for them for me? tell me if anythings out of the normal range or whatever?  im 18 if it matters

DHEA, unconjugated - 564
FSH - 4.3
Insulin - 4
LH - 3.2
Prolactin - 8.2
T-4, Free - 1.2   (Reference range 0.9 - 1.4)
Testosterone, Total - 46
TSH - 0.81




thanks
Friday, February 23rd, 2007
10:23 am
[hardtogetover]
Last October, I had a CT scan with contrast done. The technician asked me several questions, and the following conversation occured:

her: Do you have diabetes?
me: No, but I have insulin resistance?
her: What do you take for your diabetes?
me: I'm starting metformin next week.
her: Make sure you don't take your diabetes medication for three days after this procedure to make sure the dye is out of your system. If they mix, it could cause major medical problems.

I'd never had this done before, and this was her job, so I figured she knew what she was talking about as far as the CT procedure went. It also went with what my endo and GPs have said, which is that IR is pre-diabetes and metformin is a diabetes drug.
So I have to have this procedure done again, and I called the radiation place to schedule an appointment. The receptionist asked if I had diabetes. I said "No, but I have insulin resistance and take metformin." She got very confused and said she just needed a yes or no answer, and I said it was a sort of about having diabetes since insulin resistance is a pre-diabetic condition and that metformin is a diabetes medication. She said since she'd never heard of either insulin resistance or metformin, there shouldn't be a problem. I told her I'd had it done before and what the tech had said about about the chemicals mixing and yadda yadda. She repeated that she'd never heard of them, asked around her office about them, and couldn't find anyone else in the office who had, so I had to ask my GP about when I should stop taking and restarting my metformin.

Was there a better way I could have handled that, something else I could have said? I know it could have been her second day or something, but I felt really dumb or like I'd been giving her TMI. I have emailed my GP about stopping and restarting and her word is what I'll go by, but I'd love advice and experiences too. Thanks everybody. Xposted and all.
Wednesday, February 21st, 2007
4:52 pm
[pcos13]
are painful periods (when you do menstruate) because of pcos? or does pcos maybe contribute to the pain?

after i first started menstruating my period stopped for a year and thats when i went to see an endo and became regular with the help of medicines for the past 3 years. im not on medicine anymore, i stopped after a few months when i was able to get my period without it, but the first period i got after it started again lasted for 15 days and was really heavy and painful, after that it went back down to 5 - 7 days but its still painful to the point where im practically bed-ridden for at least a day or 2, it wasnt like that before my periods stopped so im just wondering if it has anything to do with it.

thanks




x-posted
Sunday, February 18th, 2007
8:43 pm
[cmyk]
The tubal
I was going to hold off on making this post a while but I think it is time. I didn't want to be premature, but I have to say from experience now, having a tubal ligation has lessened my cyst rupturing pain and PMS migraines. I figured this is something worth posting to my fellow childfree sisters.

In late September of last year I had the tubal done. It was relatively painless. I went in for outpatient surgery and before I knew it, I was in recovery. The only problems I had was a bit of dizziness afterwards, but it was the first time I'd ever gone under anesthesia and I think that was expected.

Anyway, typically speaking over the last several years I have often had blinding left hip pain before my period. My doctors and I determined the cysts were worse on my left ovary and thus bursting and leeching, causing me to feel as though I was being stabbed by a sharp object.

Then to top all that off, I'd have a blinding PMS migraine at least every other month, if not every month, of the last year.

It has now been five months since I have been off the Pill (thanks to the tubal) and I'm happy to say that I have had neither of the above.

I believe that stopping the hormones I was getting from the Pill is the reason why things have gotten to much better. And I've lost weight much easier too. Go figure.

I recommend having this procedure highly now. As a 32 year old woman who knew she didn't want to have children, and a husband who felt the same, it just was the most prudent thing to do. I wanted to get that extra estrogen out of my body and now I know it helped! :)

Current Mood: happy
10:30 pm
[pcos13]
hey girls, 

im ready to do something about my hair growth outside of the doctors because the medicines they have given me for the hair didnt help. i asked here before about what yall recommend and i heard a lot about laser. but i know laser needs several treatments to work and then after a few years the hair comes back, i was thinking about electrolysis but i heard it may leave scars and my skin is sensitive so im worried about that. any experience? and i dont even know how much ill be able to do coz both laser and electrolysis are very expensive and ive only heard about facial hair in this community, so i dont know if this is a normal pcos thing but mine isnt only on my face :(  its in many different places on my body and its getting worse. so laser/electrolysis on many areas and several treatments will be very expensive so when i saw this www.nevershaveagain.com i was kinda interested. I kno it looks like those scams but it says theres a medical journal publiced in the library and then on the side they explain how it works and it seems reasonable and they also have clinical studies and say its doctor tested. has anyone tried this or have any opinion about it? its called "finally free hair removal" 

thanks a lot
Thursday, February 15th, 2007
1:04 pm
[azryela]
Free Like New Uterus to a Good Home
That would be the answer to one of my biggest problems. And someone else's too. They can transplant nearly any major organ. Why not a uterus? I would totally give up my uterus to a woman who wanted children but had a bad uterus. I don't want kids but hey feel free to fuck up your own. Why not? But I suppose I will never be so lucky. I got back my pelvic ultrasound results. Nada. Damn't, why must I suffer through a period when I am already sterilized? It's needless misery. Especially with my cramps being so bad lately. *sigh* What can I do though? I'm a really bad liar so I don't want to go back to the doctor complaining. Apparently my PCOS isn't enough. Damn't. With my mom just barely starting menopause at 49, it gives me 20+ more years of misery.

And on that subject, one of my old doctor's said if I lose weight, it would help to regulate my crazy period. Ok, nice theory but in high school/college when I weighed nearly 100 pounds less then I do now, it was crazy. Now all of a sudden I gain 30 pounds and it is so regular that I can practically pinpoint the minute it will start. Whatever. I don't think doctor's know as much about PCOS as they would like to think.

Anyway, just had to get that off my chest.
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